James was born in Gloucestershire Royal Hospital in September 1987 with a rare condition called myotubular myopathy, which resulted in his muscles being very weak. His parents Vance and Heather provided him with 24 hour care in the family home. Sadly on returning to hospital for a routine check-up, James caught a severe infection and died, aged 20 months. Vance and Heather founded the Trust in his memory in 1989 and resolved to provide the type of help they knew from personal experience other families in similar situations desperately needed.Since its founding, the Trust has helped several hundred children and their families with respite care with new referrals arrive virtually every week. The Trust provides its services to severely disabled life limited and life threatened children aged 5 and under, and their families. All services are free to those who meet our criteria. We are a local Gloucestershire charity which helps severely disabled, life limited and life threatened young children and their families with:• free respite care in the family home , or including Multi Sensory facilities at Kites Corner• financial assistance for visits to specialist hospitals,• and equipment specially designed for children with disabilitiesRespite care is by far our most important and most requested provision. For a growing number of families it is a lifeline of desperately needed support.