My page: http://www.bmycharity.com/elusive
You are about to make a donation of £ to the fundraising page Stickler Syndrome Support Group.
You can change this amount by returning to the page.
Raised so far
Gift Aid1
| Total Raised online: | £557.98 |
| Total Raised offline: | £0.00 |
| Name | Amount | Gift Aid |
| Anonymous | £25.00 | £0.00 |
| Ruth Millensife... | £75.00 | £18.75 |
| Jerri Iehl | £25.00 | £6.25 |
| Pamela House | £30.00 | £7.50 |
| Anonymous | £90.00 | £0.00 |
| Mario Adamo | £50.00 | £12.50 |
| Charlene Feucht... | £30.00 | £0.00 |
| Stacee Taylor M... | £23.99 | £0.00 |
| Jennifer Lindeb... | £33.99 | £0.00 |
| Anonymous | £25.00 | £0.00 |
Stickler Syndrome Support Grou ...
Hello and Welcome from Stickler Syndrome Support Group
To receive the DVD 'Stickler Syndrome: Learning the Facts' only please donate at least £10
To receive the book 'Stickler: The Elusive Syndrome' only please donate at least £19.99. For those outside of Europe please donate at least £23.99
To receive both please donate at least £29.99, or £33.99 if outside of Europe.
When you make your donation we will send the book and/or DVD to the credit/debit card holder at the address that is entered on the donation page.
Please allow 28 days for delivery.
If you should not receive your book and/or DVD within 28 days please email the Stickler Support group at info@stickler.org.uk to enquire and we will get back to you. If you should forget this email address, don't worry, you can find it at the SSSG website www.stickler.org.uk
On the donation page please change the 'Donation Amount' to the correct figure and enter 'Book', 'DVD' or 'Book and DVD' as appropriate, in the Personal Message box.
If you are a UK income tax payer please also help us by ticking the 'Gift Aid' box on the donation page. If you are not aware of the 'Gift Aid' scheme there is a link on the donation page that explains it.
If you want your donation to be anonymous (in that your name will not be shown in the list of donors available below) please ensure you tick the 'I would like my donation to be anonymous' box on the donation page.
Please click on the DONATE NOW button below to make your donation. This will take you to the donation page.
Thank you.
About Stickler Syndrome Support Group
Stickler syndrome is a genetic progressive condition, which can affect both sexes and is normally passed on from parent to child. It affects the body's collagen that forms a major part of connective tissue. Stickler syndrome is a common but little recognised genetic disorder. One in 10,000 persons may be affected, although many medical professionals believe that the figure is considerably higher. Symptoms are variable and can present in different ways even with the same family. Stickler syndrome can seriously effect vision, hearing and joints and can be the cause of cleft palate.
The Stickler Syndrome Support Group (SSSG) in the UK was founded by Wendy Hughes in 1989. The SSSG can make a difference: By raising awareness of Stickler syndrome amongst medical professionals and the general public. By emphasising the value of early diagnosis for adults and children with the condition. By stressing in our literature, and to all professional and family contacts, that prompt treatment for retinal detachment and other eye problems associated with the condition can help to preserve vision. By producing clear and accurate information about Stickler syndrome in print and on our website. By organising conferences, workshops and other events for affected families and for professionals who want to be informed about the condition. The Stickler Syndrome Support Group (SSSG) is totally funded by charitable donations and all work is done by volunteers. Any donation given by you will help the SSSG to continue the valuable work it performs. Please give generously.
FIND OUT MORE
