My page: http://www.bmycharity.com/JessicaMagnusAppeal
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Raised so far
Gift Aid1
| Total Raised online: | £2,961.92 |
| Total Raised offline: | £0.00 |
| Name | Amount | Gift Aid |
| Gary, Betty and... | £30.00 | £7.50 |
| No Value | £5.00 | £1.25 |
| Mira Majercikov... | £50.00 | £12.50 |
| Alina Iljina | £100.00 | £25.00 |
| Rush | £50.00 | £0.00 |
| Nanny Lyn | £50.00 | £12.50 |
| Marina Hanratty | £25.00 | £6.25 |
| Anonymous | £10.00 | £0.00 |
| Anonymous | £250.00 | £62.50 |
| Erika Mackova | £70.00 | £17.50 |
Families Against Neuroblastoma ...
Hello and Welcome from FAN Jessica Magnus
The Jessica Magnus Appeal
When Jessica was just 3 years old, her doctor noticed a slight heart murmur, x-rays taken on her return to the UK revealed that although the murmur was innocent there was a large suspicious shadow visible behind her heart.
In December 2005 we were devastated to learn that Jessica was diagnosed with neuroblastic tumour called Ganglioneuroblastoma (derived from developing neuronal cells of the sympathetic nervous system stage 3 (consisting of both malignant and benign tumor that was taking up most of her chest, wrapped around her spine and inside her spinal canal). Jessie was only 4 years old.
After diagnosis, Jessica received 2 rounds of chemotherapy followed by 9 hours of surgery that removed just 25% of the 6 inch tumor. A biopsy of the removed tumor showed more malignancy than first thought so further 4 rounds of chemotherapy was given, however it did not shrink the remainder of the tumor at all.
Following her surgery in March 2006, Jessica UNFORTUNATELY developed progressive muscular scoliosis (curvature of her spine) and this resulted in her having to wear a body brace for 23 hours a day for 5 years. JESSICA’S BODY BRACE JESSICA 4 YEARS OLD Unfortunately in January 2011, Jessica’s tumour started growing slightly and pressing onto her spinal cord causing her problems with walking, limping and losing sensation in her legs. After numerous hospital visits, the surgeons decided to operate on her in few weeks on Valentine’s Day despite Jessica suffering from MRSA infection which she most likely picked up at the hospital. We were told that this second surgery is a very risky surgery with a 40% risk of paralysis due to them taking her tumour out of her spinal canal and on the top of them inserting spinal rods to stabilise her large scoliotic curve. The surgery took 9 hours at it was a success. Doctors managed to remove most of her tumour from the inside of her spinal canal and insert spinal rods along her spine. Jessica recovered very quickly and left hospital 9 days later. She now needs a proper physiotherapy for her weak tummy and back muscles weakened by the surgery. JESSICA 9 YEARS OLD
Jessica’s future: Jessica might need few further surgeries to straighten her curve, one possibly this summer and the last one when she stops growing. Meanwhile Jessica’s mum supported by charity FAN (families against neuroblastoma) started an appeal along with other children diagnosed with neuroblastoma/ganglioneuroblastoma to raise awareness of this cancer and to raise vital funds for Jessica’s physiotherapy which unfortunately is not available here in the UK and for any alternative treatment again not available here in the UK should Jessica need it in the future. Recently, we have unfortunately seen many children with Neuroblastoma relapsing and needing a specialised antibody treatment in America and Germany as it’s not available on the NHS in the UK. Families of these children are tirelessly raising hundreds of thousands of pound to be able to take their children abroad for a hope which UK does not offer. We hope Jessica never relapses but this cancer is so unpredictable and therefore our fundraising efforts continue. You can also donate directly into Jessica's Natwest bank account. Account number - 88712885, Sort Code - 55-81-28. For further details on ways to donate please visit www.familiesagainstneuroblastoma.org Visit Jessica's facebook group here - https://www.facebook.com/groups/15045300538/ Donating here is quick and secure. It is the most efficient way to give – so every donation goes further – and if you are a UK taxpayer and give Gift Aid consent the charity will receive extra at no cost to you.
Group(s):
Team Jessica Magnus
About Families Against Neuroblastoma (FAN)
FAN needs your support in many ways. Donations made to FAN will primarily be used to directly support our families. It will help provide the children with days out, wish experiences, and other things that are all intended to boost moral and put a smile on everyone's face. We firmly believe this can help make a positive impact on the success of the child's treatment. Unfortunately, not all our children will survive, and therefor it is vitally important that we can help pack as much fun into their short lives as we possible can, and leave the family with precious memories to cherish after they have gone.
A donation to a child's individual appeal will be held for the sole use of that child for treatment or for quality of life. These appeals often have a very high target due to the enormity of the medical expenses, and are therefor dependant on the generosity of donations from the general public. This really can mean the difference between life and death. Should the child no longer need the money raised in their name, funds will either become available to other children within the charity, moved to our emergency fund, donated to Neuroblastoma research, donated to our general fund, or a combination of all four, as agreed with the family.
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